Coronavirus and Intestinal Cystitis.

So my wife was tested for the Coronavirus. She was tested on Thursday. She had been feeling sick for a couple of days at that point but Thursday she felt, as she describes it as "awful and scared." She was off work that day as it is the day has her college classes. She has had her flairs not more that a few days prior to feeling sick. Luckily she did not have a flair than as well.

The sickness on started out as almost a cold. She was congested and had a headache with some body aches and pains. We thought she just had s cold. 

The very first symptoms of all this was her being tired. As always we questioned that she has only just had a rough night sleep. Broken sleep from noises outside maybe, the cats being obnoxious jumping on the bed when we were sleeping, or maybe even my own tossing and turning. But as the time rolled on and Thursday had her feeling completely unwell, she called the primary and was called in to get tested.

They met her at the car when she pulled in. They placed a mask on her immediately and esscorted her in to the building, holding doors as she went asking her not to touch anything.

After taking with the nurse who came in with a full respirator on, she was tested first for the flu and then, after 10 minutes when the results came back negative. She was tested for Covid19.

She the results would take about 5 days.

On Sunday morning, the town health department called her to tell her she her test results came back positive and that she has the Coronavirus. 

She was then asked a battery of questions about her symptoms what she does for work, who she lives with, and of course her medical history. 

My wife not only has interstitial cystitis but has had lyme disease three times in the past. Three times she contacted lyme disease and she has interstitial cystitis. That was all they needed for her medical history. How the two correlates are unknown to me but it seems well that the CDC is being alerted to the information.  

The hope is that by having this information, we can, as a group of those effected or afflicted with interstitial cystitis, will be able to better understand how this health problem is impacted by the new novel coronavirus.

I will hope to keep you all updated as time goes on on about her health and interstitial cystitis with the coronavirus.  Luckily her age,  and the fact that she does not have asthma or other respiratory conditions that would be a much larger concern for her health. 

For now though, if you or someone you know is effected with IC and or Coronavirus, I would love to hear your story in the comments.

How she contracted Interstitial cystitis

Earlier today my wife seen a post, on a facebook group about IC that she belongs too, someone on it shared a specialist's comment about how Lyme Disease can cause IC. The doctor was at a convention on Lyme Disease when he expressed this conviction of his. Many have long been saying these are correlated.

My wife has been infected with Lyme disease twice now in her life. Once when she was much younger and then again only a couple of years ago. Personally, I do not think that I would be happy to know such news. I would only be aggravated myself with the knowledge that something so devastating by itself caused such lasting damage only after I beat the rare disease twice.

She has had multiple UTI's, too many to count so that could be a cause to some degree (even if they are common among women). She has suffered from PVD as well in the past and a host of other kidney and bladder injuries.  Although there is no official known cause of interstitial cystitis, the guess is just as worth while taken to try and understand the cause of this debilitating disease.

One thing known for sure is even though we can not no the true cause of interstitial cystitis, we do no that it is a real gruesome disease that effects a significant part of the worlds population. Women are more likely afflicted than men and that sucks as well. The fact that everyone is effected differently is also of aggravation in the community in trying to find a wellness plan to help stop flare ups. The most we can do is to help spread knowledge and not give up hope that a real life with this illness is possible as well as hope that a way to conquer IC is in the future.

Please feel free to share any comments you have or your story to how IC has effected you or what you may think have brought upon the disease or made living with interstitial cystitis worse in your life. Also, keep the hope and support alive for each other, You are not alone, your loved ones are not alone. We all fight to maintain a normal life living with Interstitial Cystitis.

https://www.ic-network.com/lyme-disease-interstitial-cystitis/

Does Pizza effect IC

Pizza is one of those foods everyone loves but does it effect Interstitial Cystitis? The short answer is Yes.

Pizza is commonly made with a tomato based sauce. Since tomatoes are highly acidic, the acidity reacts to cause a flare up for the IC. Everyone is different by my wife is always in pain after pizza, if not that night then most always the next day. It is terrible since who doesn't love pizza?

It is easy to order pizza, especially in the beginning of the diagnosis with IC and forget that it will effect yourself or your significant other. I can not count how many times in the beginning I mentioned doing a pizza night only to be met with annoyance at forgetting that she can not have it.

If you really want pizza, try getting pizza light on the sauce or with white sauce. The rest of a plain pizza will be fine, but remember to be careful with your toppings.

Obviously avoid the tomatoes I would stay away from the banana peppers as well and see what else does not sit well before ordering. Most of the meats should be fine.

Good luck, regular pizza and IC do not mix well. But when you really want it there are better way to order it.

September was IC month

Just found out September is IC awareness month and it is October.  Strange that other than a month on a calander as shown by google that IC gets no coverage.
A disease that effects millions around the world (stats range from 4 million to 10 million) gets virtually no attention. No spotlight!?

I get that it is a tough subject and may not be the end of the word in comparison to other disease, but that does not take away from the severity of disease to those who live with it.

Doctors, nurses, and other healthcare providers commonly misdiagnosis it or is confused by it. There are few medication to choose from that treat and no real know ways to relieve the pain and discomfort it causes.

It tests relationships, leads to depression, and everyone is effected differently. A disease this misunderstood and unknow deserves a moment in the spotlight even if it isn't a month can we at least get a day to tell the world, hey this is real and it needs to be known that it is real and people who have it are not lying when they say they have pain or "trying to hold it but have to go pee." This is seriously disruptive to our life not a joke to yours.

Next year, lets rally to do better. At least for a day.

The IC diagnosis

After learning my girlfriend, now wife, has been diagnosed with Interstitial Cystitis, also known as IC, I was upset and worried for her. She was a ball of emotions, mainly upset and terrified. While IC is not a death sentence, it can be the death for your current life style if you don't take precautions against it. Everyone experiences their own severity of IC. While no one may fully understand it that does not have it, IC is something that effects both partners in a relationship and anyone who has it or dating someone with it will agree.

I hope this blog will help my wife and I better understand IC and deal with it.
I also hope that it can help you.

Let us try and learn more, share experiences, keep up with trends and treatments, and ways to cope and deal with it. It is not a very known or understood condition. I hope this blog helps us all spread the word or at the very least help up all understand that you are not alone going through this personally or with someone else. We are here and we care about you.